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Thalassemia2 Survey

Please help us understand some practical aspects of treatment of thalassemia in your practice. We would appreciate if you can take a few moments to give your valuable comments in the questionnaire below

  1. In your practice, what percentage of transfusion dependent anemia with following conditions, are on treatment with iron chelators *
    2. Beta Thalassemia
    %
    Sickle cell disease
    %
    Myelodysplastic syndrome
    %
    %
  2. What percent of thalassemia patients in your practice are *
    3. Transfusion dependent
    %
    Non Transfusion dependent
    %
  3. In your practice what percent Non transfusion dependent thalassemia (NTDT), requires iron chelation *
    4. Ans %
  4. What is the approximate age of Thalassemia Major patients at the time of diagnosis *
    5. Ans
  5. In “newly diagnosed thalassemia major” patients, after how many months of blood transfusion, do you initiate iron chelation therapy *
    6. Ans months
  6. What percentage of your patients undergoing iron chelation therapy, do the following investigations for treatment monitoring: *
    7. Serum Ferritin
    %
    Liver Biopsy
    %
    Liver MRI
    %
    Cardiac T 2 * MRI
    %
  7. What percentage of your patients undergo bone marrow transplant for beta Thalassemia *
    8. Ans %
  8. In patients with transfusion dependent beta thalassemia who has undergone allogenic BMT, do they require to continue on iron chelation? (Please tick) *

  9. If a patient requires iron chelation post BMT, how long should they be on therapy

    10. Ans

  10. Do you use hydroxyurea in Thalassemia patients? *

  11. If you are using Hydroxyurea in your thalassemia patients, which patient groups in your practice you prescribe hydroxyurea?
    12. a
    b
    c
    d
  12. In your clinical practice, what is the optimum deferasirox dispersible tablet dose for patients with high iron intake (patients with high transfusion burdens with rising ferritin levels), please tick *